RESOURCES FOR LIVING WITH NMOSD
Becoming unstoppable starts with establishing the right support system and finding resources to take control of your neuromyelitis optica spectrum disorder (NMOSD).
Upcoming Events
This Mental Health Awareness Month, join Christine Ha and others from the NMOSD community for a Facebook Live event about how they’ve prioritized their mental health and overall wellness to live unstoppably with NMOSD.
Date: Thursday, May 16, 2024
Time: 1:00-2:00 pm ET
Learn more about NMOSD and a treatment option in the convenience of your home! Join us for this interactive virtual event featuring a specialist and a person living with NMOSD.
Contact NMOSD Help Lines for One-On-One Support
NMOSD Helpline
Send an online message or call (800) 793-4670 to speak with a member of the Guthy-Jackson patient advocacy team who can answer questions you may have about living with NMOSD.
Myelitis Helpline
Complete a few survey questions or call (855) 380-3330 to receive information that may help you along your disease journey.
Rare Disease Care Line
By calling, you can access free and confidential case management assistance in three key areas, including health insurance navigation (insurance applications, out-of-pocket costs, denials, benefits understanding, etc.), disability support services (including assistance with appeals) and financial guidance (to reduce medical costs and everyday expenses).
Learn More About NMOSD Research
Research Funded by The Guthy-Jackson Charitable Foundation
This library features a wide range of research publications related to NMOSD that provide key insights and learnings about the disease.
Research Funded by The Sumaira Foundation
These articles will help you understand the science behind NMOSD based on research funded by The Sumaira Foundation.
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