Becoming unstoppable starts with establishing the right support system and finding resources to take control of your neuromyelitis optica spectrum disorder (NMOSD).

Kayla, who lives with NMOSD, smiling

How to Manage Life With NMOSD

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Discover the right tools and resources to help you confidently navigate life with this disease.

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Care partner and husband, Frank, sits on a bench with his wife, Kim, who lives with NMOSD.

Mental Health Resources & Support Groups

Support Groups

When living with NMOSD, it’s important to prioritize your physical, mental and emotional health equally.

Doug, who lives with NMOSD, is sitting down while his care partner and wife, Holly, smiles standing next to him.

Financial Support Options

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Living with NMOSD can be stressful — especially when it comes to finances. Access resources to help understand your healthcare and insurance options.

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Care partner and mother, Brooke, is smiling with her daughter, Ireland, who lives with NMOSD.

Resources for Care Partners

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Find resources that can help you be there for a loved one with NMOSD, while also taking care of yourself.

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Upcoming Events

Events resources

This Mental Health Awareness Month, join Christine Ha and others from the NMOSD community for a Facebook Live event about how they’ve prioritized their mental health and overall wellness to live unstoppably with NMOSD.

Date: Thursday, May 16, 2024

Time: 1:00-2:00 pm ET

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Learn more about NMOSD and a treatment option in the convenience of your home! Join us for this interactive virtual event featuring a specialist and a person living with NMOSD.


Contact NMOSD Help Lines for One-On-One Support

Guthy-Jackson Charitable Foundation

NMOSD Helpline

Send an online message or call (800) 793-4670 to speak with a member of the Guthy-Jackson patient advocacy team who can answer questions you may have about living with NMOSD.

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Siegel Rare Neuroimmune Association

Myelitis Helpline

Complete a few survey questions or call (855) 380-3330 to receive information that may help you along your disease journey.


Patient Advocate Foundation

Rare Disease Care Line

By calling, you can access free and confidential case management assistance in three key areas, including health insurance navigation (insurance applications, out-of-pocket costs, denials, benefits understanding, etc.), disability support services (including assistance with appeals) and financial guidance (to reduce medical costs and everyday expenses).

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Learn More About NMOSD Research

Guthy-Jackson Charitable Foundation

Research Funded by The Guthy-Jackson Charitable Foundation

This library features a wide range of research publications related to NMOSD that provide key insights and learnings about the disease.

The Sumaira Foundation

Research Funded by The Sumaira Foundation

These articles will help you understand the science behind NMOSD based on research funded by The Sumaira Foundation.

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