CARE PARTNERS

Care partners play an extremely important role in the lives of people with neuromyelitis optica spectrum disorder (NMOSD). They often provide everything from emotional to logistical support, helping make important decisions about finding the right doctor and starting treatment. Care partners also deserve to get the assistance they need along the way, and there are specific resources to help empower and support this community.

Explore Advice for Care Partners

Patients Rising
Caregiving to All Ages Resource Hub

Find podcasts, articles and infographics focused on the unique needs that come with caring for a loved one of any age with NMOSD.

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Parent to Parent USA
Peer Support for Parent Caregivers

This organization offers information and one-on-one emotional support for parents of individuals with disabilities and special healthcare needs.

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National Organization for Rare Disorders
Rare Disease Caregiver Respite Program

This program helps alleviate the challenges and stress faced by care partners by offering financial assistance to those who qualify.

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Living Well With Low Vision
Who Are Caregivers

Find information about the unique needs for care partners and how to address them.

open_in_newLEARN ABOUT BEING A CARE PARTNER

Prepare for Your Loved One’s Appointments

To get organized for a future doctor’s appointment, download this discussion guide, which includes reminders, considerations and conversation starters.

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